For US Audiences Only

FOR U.S. HEALTHCARE PROFESSIONALS

FOR U.S. PATIENTS

For US Audiences Only

SHARE YOUR STORY WITH OTHER INDIVIDUALS WITH CYSTINOSIS AND THEIR LOVED ONES

Cystinosis share your story

WHY SHARE YOUR STORY?

Your story can be a powerful way to create connections with people who are experiencing some of the same challenges you are experiencing. It may help people with cystinosis and their loved ones to find hope and strength on their journey. People in the cystinosis community may benefit from learning about your personal experiences with cystinosis, including your ocular symptoms and treatment with CYSTADROPS. Participation is completely voluntary, and you may stop participating in the program at any time and for any reason.

WHAT WILL YOU BE ASKED TO DO?

Your story is important, and we’d love to hear it and help you share it with others! You will decide how much or how little you want to share about your experiences with cystinosis or CYSTADROPS. We can assist you with the draft of your story. Parts of your story may appear in patient education materials or on our website. We may even discuss capturing your story in a video if you’re interested! If you choose, you can share your story anonymously, and your real name will not be disclosed on any materials to protect your privacy.

Please note that submitting your information below does not necessarily mean that you will be selected to share your story.

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Using CYSTADROPS

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Getting CYSTADROPS

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Indications and Usage

WHAT is CYSTADROPS?
CYSTADROPS (cysteamine ophthalmic solution) 0.37% is a prescription medicine used to treat corneal cystine crystal deposits in the eye in adults and children with cystinosis.

Important Safety Information

Before starting CYSTADROPS, tell your healthcare provider (HCP) about all your medical conditions, including if you are pregnant or plan to become pregnant, breastfeeding or plan to breastfeed. Tell your HCP about all the medicines you take, including any prescription and over-the-counter medicines, vitamins, or herbal supplements.

To minimize the risk of contamination, do not touch the dropper tip to the eyelids, surrounding areas, or to any surface. Keep bottle tightly closed when not in use.

What are the possible side effects of CYSTADROPS?
CYSTADROPS may cause side effects including:

A condition where the pressure inside the skull increases for unknown reasons has been reported with cysteamine taken by mouth or cysteamine eye drops (used at the same time as cysteamine taken by mouth). This condition went away with the addition of medicine that increases the production of urine.
Use with soft contact lenses should be avoided as CYSTADROPS contains the preservative benzalkonium chloride which may be absorbed by soft contact lenses. Remove contact lenses prior to application. Lenses may be reinserted 15 minutes following administration.

The most common side effects of CYSTADROPS are eye pain (stinging), blurred vision, eye irritation (burning), eye redness, discomfort at instillation site (sticky eyes or sticky eyelids), eye itching, watery eyes, medicine deposit on the eye lashes or around the eyes.

These are not all the possible side effects of CYSTADROPS. Call your HCP for medical advice about side effects. You are encouraged to report side effects of prescription drugs to the FDA. Call 1-800-FDA-1088 or visit www.fda.gov/medwatch.

CYSTADROPS^® (cysteamine ophthalmic solution), for topical ophthalmic use, is available as 3.8 mg/mL of cysteamine (0.37%) in 5 mL bottles.

INDICATIONS AND IMPORTANT SAFETY INFORMATION

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Important Safety Information

Before starting CYSTADROPS, tell your healthcare provider (HCP) about all your medical conditions, including if you are pregnant or plan to become pregnant, breastfeeding or plan to breastfeed. Tell your HCP about all the medicines you take, including any prescription and over-the-counter medicines, vitamins, or herbal supplements.